Break out your best track shoes and show your support for Chiari Awareness Month on Sept. 18 during the Chiari Awareness 5K race at the Sunset Cove Amphitheater in Boca. Proceeds from the event will benefit the Bobby Jones Chiari & Syringomyelia Foundation and go toward research and awareness campaigns for Chiari, Syringomyelia, and Ehlers-Danos—three rare, debilitating brain diseases
This Sunday’s inaugural race was founded by 15 year-old Noah Forman, an award-winning athlete whose participation in contact sports was cut short when he was diagnosed with Chiari Malformation and Syringomyelia two years ago. Forman has created the only 5K race in the country to benefit Chiari and similar brain diseases and has so far raised $26,000 on his own toward the cause.
“A running and walking event is a good community support event for those suffering from these diseases,” said Forman. “I felt like I was dealt lemons with my diagnoses, and have decided to make lemonade. I hope to raise as much money as possible to benefit this cause and make it an annual event every September, Chiari Awareness Month.”
Registration is $35 and begins at 6:45 a.m. this Sunday, and the run begins at 7:30 a.m. Those choosing to participate in the one-mile walk can register from 8-8:45 a.m. and begin walking at 9 a.m. The walk is free for kids and for anyone suffering from Chiari, Syringomyelia, and Ehlers Danlos Syndrome.